INSTITUTIONAL SNaNe MEMBERSHIP
The Swiss Narcolepsy Network (SNaNe) plans to launch a national Swiss database on narcolepsy. The basic idea is run a scientific database and prospectively collect data on narcolepsy and related disorders of hypersomnolences. The SNaNe database is designed as a long-term project to integrate clinical and preclinical data, including sleep studies and biosamples (blood and cerebrospinal fluid) at inclusion and at regular follow-up visits. The SNaNe database is implemented as a web-application using the Redcap data platform. The SNaNe invites Swiss sleep centers who are experienced with clinical care of narcolepsy and other patients with hypersomnolences to join the database as institutional member. The institutional members must follow Good Clinical Practice “GCP-guidelines”. Only SNaNe institutional members will have access to data of their own study site.
For any further information on the Institutional Membership and Swiss Narcolepsy Database please contact ramin.khatami@barmelweid.ch
Before proceeding with the application we invite you to the check the official criteria to become SNaNe Institutional Member